I'm Evanna. I was born at the end of September 2016 with spina bifida, hydrocephalus, Chiari II malformation, and clubbed feet.

This site is about me and about my conditions. But as you'll hopefully discover, I've been a fighter since I was born, and while I have these conditions, they do not define me.

I have a mommy, daddy, and 4 older siblings that absolutely adore me. Even though I'm the youngest, I've taught them all a thing or two, and suspect I'll continue to do so.

I hope this site encourages you, inspires you, and informs you.